Initiatives
Turning lived experience into action.
We raise awareness about Epilepsy, advocate for the rights of a Person with Exceeding Expectations, advocate for affordable healthcare, and empower people living with epilepsy and their families to be ambassadors.
Our Services
What we actually do, every day
Raise Awareness
Raise awareness about Epilepsy and challenge the stigma and misinformation that surround it.
Advocate for Rights
Advocate for the rights of a Person with Exceeding Expectations — including dignity, protection from abuse, and space to contribute based on Merit.
Affordable Healthcare
Advocate for affordable healthcare, including access to anti-seizure medicine and critical medical personnel like neurologists.
Empower Ambassadors
Empower people living with epilepsy and their families to be ambassadors who can help their communities understand Epilepsy.
Why this work exists
The work begins with lived experience — and reaches into everyday community life.
From challenging stigma to improving access to information, healthcare, protection, and support, these initiatives put the movement's purpose into practice.
Why these services matter
Awareness is the starting point. Dignity, care, and participation are the goal.
The movement began with a personal experience of stigma. The work now reaches outward: helping communities understand Epilepsy, supporting people and families, advocating for access to care, and creating space for people with epilepsy to be seen for what they can contribute.
Make accurate understanding easier to share.
Stand against abuse, exclusion, and stigma.
Advocate for affordable treatment and specialist access.
Equip people and families to carry the message forward.
Goals & Objectives
What these goals mean in practice
Promote the Welfare of People With Epilepsy
- Protecting people with epilepsy from abuse, with the help of police, local government authorities, and Nyumba Kumi.
- Ensuring access to anti-seizure medicine at local hospitals.
- Ensuring access to critical medical personnel like neurologists.
Educate the Community About Epilepsy
- Conducting epilepsy awareness campaigns across our existing communication channels.
- Bringing awareness into schools and community groups, including churches.
- Engaging community health workers and nurses in raising awareness.
Every signature moves us closer to ending the stigma.
Add your name to our petition to stop the stigmatization of people with epilepsy in Kenya.
Sign the Petition Support the Work